Autism fight continues

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The war on autism is being fought mainly on the home front – in the homes of tens of thousands of affected families. They are leading the way to an understanding of what the illness really is – not a mental disorder but a neurological and metabolic one.

However, the war is lasting longer. In 2013, the Centers for Disease Control and Prevention declared it was affecting one in every 31 boys.

The war is dragging on because mainstream doctors, government health officials, politicians and the media don’t listen to what the struggling families are telling them. For whatever reasons, they seem to have their own agenda and refuse to study these sick children.

A recent experience of my own confirmed what I believe. Although my grandson has his own autism specialist in another state, it was recommended he see a local immunologist. Armed with dozens of lab reports showing he was afflicted with numerous long-term viruses, bacteria and parasites, the local immunologist, plus the head of the department, declared that his immune system was working just fine and we had nothing to worry about. It made no sense to me or his autism specialist.

And so the battle will continue – a battle to be listened to and understood by those who can change the trajectory of this autism epidemic.

Meanwhile, thousands more children will be diagnosed with the illness; schools will experience more shortages of special-needs teachers; less money will be available for all the services they need.

I foresee that the government, doctors and media will continue to say there is no epidemic; autism is a mental condition; and there is nothing to be concerned about.

However, we, the autism families, know this is not true. Our fight will continue.

Maurine Meleck

North Augusta, S.C.

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corgimom
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corgimom 02/25/14 - 08:30 am
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As the mother of an autistic

As the mother of an autistic child, I can assure you that my son did not suffer from viruses, bacteria, and parasites. He was, and still is, healthy. He was hardly ever sick as a child and is hardly ever sick as an adult. My son, who received early intervention therapy, leads a normal life, because he is normal. He works for the San Diego Zoo, has two wonderful daughters, and is doing just fine. He doesn't have a "mental condition", he had a neurological problem, and it has been resolved. He has a few quirks, but nothing serious.

It is NOT an illness. My son is not ill with anything, autism is not a disease. It also is NOT a mental condition. It is NOT an epidemic, it is just now being better diagnosed.

He does not suffer from any metabolic illness, either.

Bizkit
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Bizkit 02/25/14 - 09:15 am
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Maureen what you are saying

Maureen what you are saying makes no sense at all. Just unbelievable.

SGT49
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SGT49 02/25/14 - 09:41 am
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What is an autism specialist?

What is an autism specialist? Do they have an MD or equivalent medical degree, or are they a self-declared "specialist"?

Sciencemom
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Sciencemom 02/25/14 - 11:51 am
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The same experience

Ms. Meleck, I'm so glad you posted this. Our family, too, has had a terrible time getting medical professionals to even look at the possibility that our child's autism had anything other than a genetic cause.

Our child had a seizure reaction to vaccines, and was also later diagnosed with celiac disease, dairy allergy, and several resulting vitamin deficiencies.

But the pediatrician at first just sneered at us when we asked if our child's intestinal symptoms should be addressed. We were given the standard lines: "It's just toddler diarrhea. They all get it." "He MUST have dairy in his diet. Are you trying to starve him?" and my favorite: "He doesn't have belly pain. He's just acting like that because he's autistic."

We don't go to an autism specialist. We don't need one. We switched pediatricians, and found one who actually sent us to a pediatric neurologist, who ruled out a seizure disorder, but diagnosed the seizure reaction to the vaccine. He advised caution with regard to future vaccines. He also ordered tests, which showed celiac disease and dairy allergy, so he sent us to other specialists for follow-up on those issues.

The difference in our child has been enormous. Our child went from text-book autism behaviors to nearly normal. This would not have happened had we not switched pediatricians.

I'm sure there are many causes and factors where autism is concerned.

I'm shocked at corgimom's comment. Corgimom, just because YOUR child had no medical issues, and is functioning as a normal adult (married! with children! and a job!) doesn't mean that there isn't a group of autistic children with all the issues Ms. Meleck describes. And that's the group that is not as lucky as your son. You should be grateful that your son was not in that group, and you should be offering support to that group, not selfishly saying that just because your sone didn't have those problems, they don't exist for others.

Sciencemom
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Sciencemom 02/25/14 - 11:54 am
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these are autism specialists

to answer SGT49's question "what is an autism specialist," a google search of "autism specialist" came up with 11,600,000 results, so you might try looking it up instead of being snide and implying that autism specialists don't know anything.

Here are the first two that came up:
http://certifiedautismspecialist.com

http://autismspecialty.com

amdachel
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amdachel 02/25/14 - 01:28 pm
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Thank you, Maurine. Autism

Thank you, Maurine. Autism continues to be ignored by the government, by health officials, and by the media. A once-rare disorder is now so common that everyone knows someone with an affected child but no health official can tell us why. And we're not talking about children who were once considered "quirky" and now are called autistic. We're talking about children who often don't talk and are in need of constant care and supervision. We're talking about children with seizures, sleep disorders and bowel disease along with their autism. Many are children who were born healthy and were developing normally but who suddenly and inexplicably lost learned skills and regressed into autism. Officially, autism has no known cause or cure. Despite this, the Centers for Disease and Prevention has never called autism a crisis. They're not even sure if there's been a real increase or just "better diagnosing" of a condition that's aways been around.

Anne Dachel, Media editor: Age of Autism

amdachel
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amdachel 02/25/14 - 01:28 pm
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The one undeniable fact here

The one undeniable fact here is that when we talk about we're talking about children with autism. No one has ever been able to show us a comparable rate among adults, ESPECIALLY ADULTS WITH SEVERE AUTISM, whose symptoms are easily recognized. Maybe when this generation of affected children ages out of school and is dependent on the taxpayers for their support and care we'll address autism as the epidemic it clearly is.

Anne Dachel, Media editor: Age of Autism

corgimom
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corgimom 02/26/14 - 05:11 pm
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Sciencemom, we have been

Sciencemom, we have been reading Maureen Melecks letters for longer than we care to remember.

For years, she insisted it was caused by vaccines.

Now she's saying it's a metabolic disorder- which it isn't- and now she is talking about viruses, bacterial infections, and parasites. Parasites, really? But what happened to the vaccines that she INSISTED was the cause?

Show me a person that lives on Earth that doesn't get viruses and bacterial infections. We are SUPPOSED to, that's what builds our immune systems. That is NORMAL. Our wonderful human bodies are SUPPOSED to get these infections, fight them off, and it strengthens our immune systems and our bodies. In fact, there is evidence that we are SUPPOSED to get things like cold viruses, because it allows our sinuses to wash themselves clean. And bacteria is very important in our world, we would literally not be able to survive on Earth without them.

As for parasites, the only way you get parasites is if you come in contact with them, and that has NOTHING to do with autism, or an immune system. Don't come in contact with parasites, and you won't get them, autism or no autism.

There are a lot of quacks and con men and women out there trying to make a bunch of money off of sick kids, and you notice that she doesn't mention the name of this out of state "autism specialist." I can tell you exactly where I took my son to- DDEAMC, MCG, and Hitchcock Rehabilitation Center in Aiken. Because I deal with reputable doctors and facilities.

Anything that runs in families and affects boys more than girls is GENETIC, no exceptions. It's carried on the X chromosome. That is an undeniable biological and genetic fact.

And it isn't, and never was, "rare". The only difference is that it used to be that children like that were isolated and institutionalized and kept hidden at home. They weren't in our schools, they weren't out in public.

It's like cystic fibrosis. It was discovered and named in 1928. Does that mean it didn't exist before that? No, it just wasn't named.

And it's the same thing with autism.

I used to volunteer in an elementary school. We had autistic kids, several of them in fact. None of them had metabolic disorders, they were normal healthy kids with neurological problems. But Maureen Meleck doesn't want to hear that, she only wants to listen to what she agrees with.

No, I don't support her, and I never will. Because hysteria doesn't help anybody. Spreading misinformation doesn't help anybody, either.

corgimom
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corgimom 02/26/14 - 05:19 pm
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This is who certifies the

This is who certifies the "Autism specialists":

(from certifiedautismspecialist.com)

IBCCES is the largest independent credentialing and continuing education organizations with a focus in special needs and human services. The IBCCES is the accrediting body for the Certified Autism Specialist (CAS) and the Autism Certificate (AC) programs. Our certification programs recognize professionals in the field of Autism who have met predetermined standards in their training, experience and performance. CAS and AC professionals live and work in the U.S. and more than 40 countries around the world.

IBCCES does not offer CEU training making it a true certifying body. President, Lyndsey Herrman, has experience in professional CEU contracting and CEU exam testing since 1999. IBCCES registry requires the same CEU standards set by state governing licensing boards. It is the foundation of IBCCES, that all registrants abide by the same CEU standards required by state licensing boards."

So there you go, this "certificate" and "certification" is by an organization that nobody has ever heard of and that has only been in business for 15 years.

corgimom
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corgimom 02/26/14 - 05:23 pm
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"Herrman is graduate of

"Herrman is graduate of Kansas State University with a degree in Family Studies and Human Services, Life Span Development and a minor in Public Relations."

This is what I got from the Net.

In my opinion, this is nothing but a money making scam. She isn't a physician, nurse, or has an credentials in the medical field.

See my post above about the quacks and the con men and women. I could set up an organization that "certified" people too, and it would be just as valid.

corgimom
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corgimom 02/26/14 - 05:27 pm
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Again, from their

Again, from their site:

"IBCCES Autism Certificate is available for all professionals working in education or related field. The Autism Certificate does not require a masters degree. Applicants include classroom teachers, paraprofessionals, school personnel, autism program support staff, autism organization volunteers."

Heck, I"d probably qualify for that!

msitua
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msitua 02/26/14 - 06:35 pm
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for CorgimoI have not a clue

what you are talking about. Our autism specialist is a doctor, who went all thru med school and all the rest of what is required to become a doctor. She is a pediatrician who turned to autism patients because her daughter became autistic from a flu vaccine at the age of 4. Yes, I have not changed my mind about vaccines-they do cause most of the autism cases. My grandchildren suffered from encephalopathy following their vaccinations and then immune dysfunction--which is what autism really is. As far as the viruses, bacteria and parasites go-they are a result of an immune system which does not function normally because of the vaccines initially. I have no idea what certificate you are talking about and could care less. You are quick to criticize others when your education is so very limited.
Maurine Meleck

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