Keep quality disabled care

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Dr. Kenneth Fuller’s guest column (“Closure of Georgia hospitals endangers mental health care,” Nov. 17) is like water in a dry desert: refreshingly right and necessary, but painfully scarce. I share completely his concerns about Georgia’s misguided effort to evict fragile, disabled citizens from their homes.

In 2010, without legislative approval or notice to individuals and their families, and contrary to the U.S. Supreme Court’s Olmstead decision supporting choice, Georgia and the U.S. Department of Justice entered a settlement agreement that requires the closure of Georgia “hospitals” – specialized residential programs for people with intellectual and developmental disabilities (I/DD). Aptly called “safety nets” by Dr. Fuller, Georgia’s hospitals provide life-sustaining care to Georgia’s most fragile citizens.

My daughter, Erica, is one such citizen. She has profound I/DD and is medically fragile. She has a seizure disorder, osteoporosis, kyphosis, hypothermia and a swallow-reflex disorder that requires her to be fed by a gastrostomy tube. She is well served at East Central Georgia Regional Hospital (Gracewood) in Augusta.

I agree with Dr. Fuller that both quality community and facility-based care is needed. For some, like Erica, her facility is her community, and she receives far more specialized care at Gracewood than she will ever receive in smaller, unlicensed settings. Medical care is not immediately available in community settings – a dangerous proposition for many current residents, like my daughter. Would we tell a patient in an intensive care unit to go home and hope there is not a medical crisis requiring immediate attention?

The “deinstitutionalization” pendulum, born of good intentions decades ago, has swung too far. It is my hope that families, professionals and advocates can convince state and federal elected officials and lawyers to take a step back and embrace quality care over quotes. My Erica and her peers across the state are at home. Evicting them only ensures more tragic headlines.

Ann Knighton

Augusta

(The writer is president of East Central Georgia Regional Hospital-Gracewood, and president of VOR, a national organization advocating high-quality care and human rights for people with intellectual and developmental disabilities.)

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Little Lamb
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Little Lamb 11/25/13 - 09:20 am
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President

She's president of the hospital, her daughter receives excellent residential care at said hospital, and she is complaining about closing the program. That's to be expected. Self-interest.

TamieVOR
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TamieVOR 11/26/13 - 08:30 pm
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Choice

Actually, Ms. Knighton is a volunteer. She is the President of the Family Council of the East Central Georgia Regional Hospital, where her daughter is also a resident. All of her advocacy is completely voluntary. She spends countless every day, every week volunteering her time as an advocate for her daughter and her daughter's peers around the country. No self-interest. Her only motive is good, quality care.

furball23
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furball23 11/27/13 - 04:09 pm
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Choice

Excellent article by Ms. Knighton. What a committed volunteer and advocate. Truly a remarkable individual, who selflessly gives her time and energy to benefit the lives of those who have disabilities. Thank you Ms. Knighton.

broach31545
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broach31545 12/02/13 - 06:35 pm
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Danger in community-based group homes in Georgia!!

Our daughter was slapped, agitated until she banged her head against the wall (the caregiver commented that she thought this was the way our daughter communicated) and left unsupervised which resulted with her slipping on a wet floor and breaking her hip. This is just one of the many cases of abuse in group homes in the community which do not have oversight and accountability. I pray Mrs. Knighton's daughter will be allowed to stay in Gracewood............Beth Roach, Jesup, GA

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