In 2010, without legislative approval or notice to individuals and their families, and contrary to the U.S. Supreme Court’s Olmstead decision supporting choice, Georgia and the U.S. Department of Justice entered a settlement agreement that requires the closure of Georgia “hospitals” – specialized residential programs for people with intellectual and developmental disabilities (I/DD). Aptly called “safety nets” by Dr. Fuller, Georgia’s hospitals provide life-sustaining care to Georgia’s most fragile citizens.
My daughter, Erica, is one such citizen. She has profound I/DD and is medically fragile. She has a seizure disorder, osteoporosis, kyphosis, hypothermia and a swallow-reflex disorder that requires her to be fed by a gastrostomy tube. She is well served at East Central Georgia Regional Hospital (Gracewood) in Augusta.
I agree with Dr. Fuller that both quality community and facility-based care is needed. For some, like Erica, her facility is her community, and she receives far more specialized care at Gracewood than she will ever receive in smaller, unlicensed settings. Medical care is not immediately available in community settings – a dangerous proposition for many current residents, like my daughter. Would we tell a patient in an intensive care unit to go home and hope there is not a medical crisis requiring immediate attention?
The “deinstitutionalization” pendulum, born of good intentions decades ago, has swung too far. It is my hope that families, professionals and advocates can convince state and federal elected officials and lawyers to take a step back and embrace quality care over quotes. My Erica and her peers across the state are at home. Evicting them only ensures more tragic headlines.
(The writer is president of East Central Georgia Regional Hospital-Gracewood, and president of VOR, a national organization advocating high-quality care and human rights for people with intellectual and developmental disabilities.)